Basics of Stigma and Misconceptions in Blood Disorders
A research-based guide to understanding and combating stigma and misconceptions in haemophilia and allied bleeding disorders.
A research-based guide to understanding and combating stigma and misconceptions in haemophilia and allied bleeding disorders.
Stigma in Blood disorders often stems from lack of knowledge and cultural beliefs, leading to social exclusion and emotional distress.
Stigma is negative attitudes and beliefs that lead to discrimination. In haemophilia, it's moderate to severe, influenced by marital status, income, and education.
Misconceptions perpetuate stigma and delay care. Research shows 45% of people have no prior knowledge of haemophilia.
| Misconception | Reality |
|---|---|
| Only affects boys | Girls can be carriers or have symptoms; VWD affects both. |
| Caused by curse or witchcraft | Genetic condition; not supernatural. |
| Contagious | Inherited, not infectious. |
| Women don't have bleeding disorders | Many undiagnosed due to misconceptions. |
Leads to isolation, depression, and poor adherence. Studies show higher stigma in low-income groups.
Awareness campaigns and education are key. 2025 research emphasizes community interventions.
Studies show stigma affects 70% of male hemophilia patients, with interventions reducing it by 50%.