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What is Haemophilia?

A simple guide to understanding the basics, types, symptoms, causes, diagnosis, and treatment of haemophilia.

Basics of Haemophilia

Haemophilia is a rare inherited bleeding disorder where the blood does not clot properly due to a lack of clotting proteins.

Types of Haemophilia

There are three main types based on the missing clotting factor:

Type Missing Factor Prevalence
Haemophilia A Factor VIII 85% of cases
Haemophilia B Factor IX 15% of cases
Haemophilia C Factor XI Rare

Symptoms

Causes

Haemophilia is genetic, caused by mutations in genes on the X chromosome. It's inherited from mothers to sons (X-linked recessive). About 30% of cases are spontaneous mutations with no family history.

Diagnosis

Diagnosis involves blood tests to measure clotting factor levels:

In Kenya, free testing at KNH, Muranga Hospital. Early diagnosis prevents joint damage.

Treatment

Main treatment is factor replacement therapy:

Management & Lifestyle

To live well with haemophilia: